Desirae Martin Collett

Torrance High School

Class of 1996

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First Name	Desirae
Last Name	Martin Collett
Graduation Year	Class of 1996
Gender	Female
Current Location	Temple City, California
Hometown	Gardena, California
Relationship Status	Married
About Me	MY HD EMAIL KISSMYASSHD@HOTMAIL.COM LOOKING TO MAKE MORE HD FRIENDS ON FACEBOOK I've got a rare degenerative disease called HUNTINGTON'S DISEASE w/ no cure. My 2 kids, Brendan 20 and Ariel 17, kids have a 50/50 chance of inheriting it from me. My dad was diagnosed with HD in 1991. I lost my father at age 48 to HD on February 7th, 2007. My mom took care of him every day for 16 years. At the end he was 65lbs, was under hospice care and had to eat through a feeding tube. It was what would happen if you combined, Parkinson's Disease, Cancer and Alzheimer’s all in one painfully cruel disease. I also have 3 siblings. One sister is 37 and has tested positive. She also has 17 year old daughter that is at risk. The other sister is 33 that has 5 kids has tested negative. Lastly, sadly my 36 year old brother tested positive for HD on 9/26/08. He has a 3 year old son. It is SO UNFAIR that 3 out of us 4 kids tested positive for HD. No mother should have to go through life with 3 terminally ill kids! Although I am already having symptoms and on meds, I’m not dead yet and plan on living as such. I've tried to do my part by getting local restaurants to have HD Fundraiser Nights, participate in HD Clinical Trails, be a the support that my HD friends & family need, created a HD Support Group on MySpace called HD Sucks, have a Cure HD license plate, have a Cure HD tattoo on my neck since 2006, having a yard sale to benefit HD.Since 2006 I have been the Team Captain for Team Papa in the HDSA OC Chapter Walks for a Cure. To top it off I have even Skydived 4 HD a totally of 3 TIMES so far. Once on what would’ve been my dad’s 52nd birthday. Second was last year with my brother on Armed Forces Day in honor of my dad who was and will always be a Marine. This year was my 3rd Skydive 4 HD on May 20th, 2012. Would’ve been my parents 35th Wedding Anniversary. My priceless husband and I have a happily dysfunctional family. I have a solid foundation of friends & family that make me want 2 fight the good fight. Without them I would be...(read more)

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